The end of 2008 
Thursday, January 01, 2009, 01:19 -
Posted by Administrator
Sorry it has been so long for an update......

Christmas was fun. I got a lot of real cool toys and have had a great time playing with them. I got this tool bench that little animals pop out when you hit a shape. I crawled to it the other day. Then when I was going to show daddy I went right to him because it was bath time. I am getting stronger in the arms and legs, so I don't need the a lot of help on the floor.

It was nice to have daddy home more than usual. It is sooo much fun to play with him.

On Christmas Eve Crystal and the boys came over and we all made sugar cookies. While we were doing that daddy set up skype on the computer from work and scared Crystal. It was funny.

The day after Christmas mommy, Crystal, Cole and I  went shopping at the mall and had lunch at Arby's. I always have so much fun shopping. HEEE HEEE

Mommy and daddy are getting prepared for the trip to the cities. I think that they are nervous and anxious. We all want to see what the results will be. I know that I really want to walk around and get into things. Soon I will.

Pictures will be coming soon.

HAPPY NEW YEAR everyone.


This year has gone by so fast. All in all it has been a wonderful year.  Of course Derek and I got news that we did not want to get but that is always going to happen. No matter what the news is Christina is doing so great and we all have each other. Christina is growing so fast and learning new things all the time. She is such a blessing in our lives and she is truly an amazing little girl.

Sick again 
Tuesday, December 23, 2008, 16:15 -
Posted by Administrator
I am sick again. I went to the doctor today to make sure I will be okay when I go to Children's.  I had another ear infection and a very sore throat. So the doc gave me a shot of an antibiotic in my leg and that is suppose to take care of everything. It was real painful but mommy was there and made me feel better.

Yesterday I walked in my braces all by myself while listening to Peggy Sue. I really like music. We have been doing a lot of indoor activities because it is really cold outside.

Phenol Blocks 
Saturday, December 20, 2008, 01:32 -
Posted by Administrator
So the trip to the cities yesterday was not fun at all. There was a big accident on the freeway in Wisconsin and we had to sit there for a long time. We did make it to Minnetonka on time with enough to spare for lunch before my appointment.  So Tanaguchi said that it is a go for phenol blocks to help my hips develop correctly. The results are immediate and he said that I will probably have to re learn everything that I know; such as walking in the gait trainer and balance, because the tone in my legs will be different.  We are also looking at using botox for my arms but mommy and daddy said that we are only doing one thing at a time. I am also getting botox in my calves at the same time as the phenol.

So when I get the phenol I will be in the OR and mommy and daddy can not go in with me. I know that they are sad about that. I am a trooper I know that I will be just fine.

News today my tooth (molar) finally broke through and there was a lot of blood but it felt better after wards. I still do not want to eat much unless it is cold but that will pass soon. Yippy

Pictures will follow. Daddy got a picture of the whole crew at Gillette Childrens.

Whats new.... 
Wednesday, December 10, 2008, 05:05 -
Posted by Administrator
On December 1, I got to see Santa Clause. He read me a book and sang Rudolph with me. It was fun. After we went to find me an outfit for my pictures that I am going to get done. We didn't find one we liked.



I got real sick right after we visited Santa. It started with a cold and then by Saturday I broke out with hives but mommy and daddy didn't know that. Mom said that if they were blue instead of red I would have looked like a smurf. I did not sleep for the whole week, mom and dad didn't get much either. I really didn't want to eat much and lost some weight. On Saturday is when the hives broke out, mommy and daddy took me to urgent care that morning and what started as a cold ended up to be an ear infection, bacterial infection, and a viral infection (the cold) with hives. So I am taking antibiotics. I feel much better now. Still sick but better.

We got our Christmas tree on Saturday. Out neighbors brought it for us. We were going to go with them to pick one out but of course I was sick. Deb, Cory and Trevor stayed for a while and hung out after they brought over the tree.  It is very a very pretty tree.I really like playing with Trevor. He is 5 and in kindergarten. We have fun. I also walked for Deb, Trevor's mom. Mommy and Daddy were very impressed with me walking for someone else.



On Monday the vision teacher came with Jenny to see how I am doing. She was very happy with the improvements that I have made.  After a couple of days of antibiotics I am feeling much better and sleeping much better. Now mommy and daddy are sick.

Today I walked to grandpa Eddy's in my gait trainer in the snow with mommy. It was so fun. Grandpa Eddy lives across the driveway. I got a Reeses peanut butter cup when I got there. He always has chocolate for me.


Today my Botox got rescheduled and it is January 7 instead of February 3. I will be getting phenol blocks as well. Mommy is already a little nervous because I have to go into the OR and have local anesthesia. We will keep everyone updated when the time comes. Mommy also canceled my sleep appointment in the cities on Friday because I was too sick earlier in the week and did not want to push anything.







Thanksgiving 
Sunday, November 30, 2008, 18:01 -
Posted by Administrator
We all have a lot to be thankful for here, hope that everyone else feels the same way. It has been real nice having daddy around these extra days. On Saturday he too me swimming and we had lots of fun.

My molar came out on the one side. We it is peaking out half way and I have a flap of gum covering the rest. It has been very painful and mommy has gotten little sleep, but it is almost over.

I am getting better in my braces but I still do not like them. I guess I will have to get over that. I am also trying real hard to say mommy and daddy. I think I almost got it.

Bye for now....



Dentist 
Wednesday, November 26, 2008, 03:10 -
Posted by Administrator
Yesterday I got my first teeth cleaning. I was not too happy with it but It was not too bad. I have great teeth and do not need to come back for 6 months.

This weekend uncle James and aunt Robyn came over on Sunday and I showed some of the new things that I can do. Robyn even read me a book. Uncle James and daddy gave me swing rides on my sheet and they bounced me too. It was fun.

So not to much is new here. Hope that everyone has a happy Thanksgiving. Toodles

Over with the Cities !!!! 
Thursday, November 20, 2008, 05:04 -
Posted by Administrator
We all made it in one piece. The trip on Friday and the trip on Tuesday are officially over and we made it. Boy it was a long week thank goodness it is over. We have one more appointment in December and then January and I should have a long break... Doctor appointment free for a while unless something comes up.

I of course did not like the trip either time and I let mom and dad know about it. So I got my AFO's and they are very cute. Thank daddy for picking such a great pattern to go on them. I already got compliments. I do find that it is hard to walk in the AFO's but mommy will get me doing it in no time.

Today mommy and I went to Walmart and got a ham for dinner and guess what? I liked the car ride. HA HA We also got peanut butter chips so we can make peanut butter brownies tomorrow. I like to help and of course eat the brownie batter. Who doesn't ?


Cruzin the mall & more info 
Tuesday, November 11, 2008, 03:40 -
Posted by Administrator
On Friday mommy, Crystal, Cole, and I went to the mall and had lunch at Arby's. I rode in Cole's double stroller with Cole. He sat in his big brothers spot and I sat in Cole's spot. It was real fun. I can't wait to do that again.

On Sunday mommy and I went to our neighbors house. They have a 5 year old little boy and we played. It was real fun. They have a big dogie, but he didn't bother me. Can't wait to go over and play again.

Well things got kind of busy around here.... Here is whats new... IFSP was 11-11-08

I have been walking in my gait trainer real well. I move my legs all by my self. I even walked for Katie during therapy. I am so proud of myself and so are mommy and daddy. I really like to walk.  I had my IFSP meeting for birth to there and that is when everyone gets together to discuss how far I have come and new goals that we should all work for. It went pretty well. Daddy came home for the meeting. We are talking about touring a school for me with in the next 4-6 months. When I turn 3 I start school. Mommy is very worried and I think daddy is too. Anyway I have come real far in 6 months. That is how often we do the IFSP meetings.

TIME STAMP IS WRONG 11-14-08 - Is the date today for the doctor

I had a doctor appointment in the cities today it was with Dr. Engle. He is the eye doc. I haven't seen him min a year. The news is pretty much the same. No glasses because they  will not help me. My vision issues are more with the brain than the eye. I have damage to the optic nerves that is the same as before he just said that it is more apparent than a year ago. Now Dr. Engle said that the nerves are also on the small side. None of this can be fixed and no one will be able to tell what I can see until I can tell everyone.

The car ride was absolutely horrible. I was up from midnight until 3 in the afternoon when we got home. I was not a very pleasant person to be around.

Mommies view on the news....

We all hate to go to the doctors and get news that we do not want to hear. It is hard and it hurts but what the doctors say does not change what Christina has accomplished so far. No doctor can take away or change who Christina is.  So we all go and roll with the news because it will never change anything- Christina is  a healthy and absolutely amazing little girl in everything that she does.

Gait trainer work 
Wednesday, November 05, 2008, 21:04 -
Posted by Administrator
Guess what???? I walked up and down the hall way 3 times in my gait trainer and I moved my feet all by my self  mommy didn't move them once. It was real hard work but I did it.

Mommy was so proud of me and I was real proud of myself too.

Kitty !!!! 
Sunday, November 02, 2008, 20:18 -
Posted by Administrator
Guess what I got an early Christmas present...... His name is Hans Solo. Mommy and daddy got me a baby kitty. He is so cute. I was a little jealous at first but I am over that now. Everyone is adjusting well and he has been here since Saturday.

On Halloween I was a bat girl. Mom and I went to Coffee Grounds and then to see dad at work and show the office my costume. Auntie Maria, mom and I went out and had Mexican food for lunch. I was real tired so I came home for a long nap. I sure needed it. When dad got home we all had dinner and I got dressed up again and we went to the neighbors for trick or treat's.

Here are some pictures of me as bat girl and my new kitty....

Oh ya and daddy got me a bean bag chair, it is pink. We got it when we got Hans his stuff.


Mom and I at the office


Daddy and I getting ready to go trick or treating


Flying Bat Girl!!!!


Mom and I at lunch with auntie Maria


Hans Solo and I getting to know each other


More of Hans Solo and I


Isn't he cute ????











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